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Location

Boston, US


Charity registration number

04-3180414


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VHL Alliance

About us

Von Hippel-Lindau is a genetic condition involving the abnormal growth of blood vessels in up to 10 parts of the body. It is caused by a flaw in one gene, the VHL gene, which regulates cell growth causing patients to battle a series of tumors throughout their life.

The VHL Alliance is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.

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